AAADMJ in Proximity
The ‘AAADMJ in Proximity’ project is aimed at all Machado-Joseph patients, their families and carers living in the Azores archipelago. Its primary mission is to standardise the pursuit of the objective of the AAADMJ's Centre for Care, Accompaniment and Social Rehabilitation for People with Disabilities and Incapacities (CAARPD) at regional level, i.e. to develop a social support network aimed at improving the quality of life of patients and carers, allowing greater equity in access to AAADMJ services, thus reducing the effects of the archipelagic situation.
AAADMJ in Proximity has the following main objectives:
- Carry out a comprehensive characterisation of the YMDD population living in the Azores archipelago with the creation and management of an Information System;
- Follow-up through social support, psychological support and physiotherapy services, in person every two years and online whenever necessary and by appointment;
- Create and streamline inter-institutional contact networks, enabling a more agile and appropriate response to each situation.
