{"id":3481,"date":"2026-03-17T18:14:56","date_gmt":"2026-03-17T18:14:56","guid":{"rendered":"https:\/\/aaadmj.com\/?p=3481"},"modified":"2026-03-17T18:20:05","modified_gmt":"2026-03-17T18:20:05","slug":"dia-mundial-das-doencas-raras","status":"publish","type":"post","link":"https:\/\/aaadmj.com\/en\/dia-mundial-das-doencas-raras\/","title":{"rendered":"World Rare Disease Day"},"content":{"rendered":"

The Associa\u00e7\u00e3o Atl\u00e2ntica de Apoio aos Doentes de Machado-Joseph (AAADMJ), in partnership with the University of the Azores, marked Rare Disease Day 2026 on February 28 with the event \u201cRare in Action: Caring Means Taking Action,\u201d held at the Carlos Silveira Municipal Pavilion in Ponta Delgada.<\/p>\n\n\n\n

This initiative brought together various organizations, professionals, students, and the general public in an atmosphere marked by sharing, raising awareness, and emphasizing the importance of collaborative action in the field of rare diseases.<\/p>\n\n\n\n

Throughout the day, various awareness-raising activities, screenings, and opportunities for interaction with the public were organized, highlighting the vital role of information, knowledge, and early intervention in promoting health and well-being.<\/p>\n\n\n\n

AAADMJ would like to express its deep gratitude to all partner organizations, professionals, students, and volunteers who contributed to making this initiative a reality, as well as to everyone who attended and actively participated in the event. Everyone\u2019s support and involvement were essential to the event\u2019s success.<\/p>\n\n\n\n

\u201cRaro in Action: Caring Is Taking Action\u201d demonstrated, once again, that caring means being present, taking action, and working together to build a more informed, inclusive, and supportive community.<\/p>\n\n\n\n

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\u00a9Hugo Moreira<\/figcaption><\/figure>\n\n\n\n
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\u00a9Hugo Moreira<\/figcaption><\/figure>\n\n\n\n
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\u00a9Hugo Moreira<\/figcaption><\/figure>\n\n\n\n
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A Associa\u00e7\u00e3o Atl\u00e2ntica de Apoio aos Doentes de Machado-Joseph (AAADMJ), em parceria com a Universidade dos A\u00e7ores, assinalou, no passado dia 28 de fevereiro, o Dia Mundial das Doen\u00e7as Raras 2026 com a realiza\u00e7\u00e3o do evento \u201cRaro em A\u00e7\u00e3o: Cuidar \u00e9 Agir\u201d, no Pavilh\u00e3o Municipal Carlos Silveira, em Ponta Delgada. Esta iniciativa reuniu diversas entidades, […]<\/p>","protected":false},"author":2,"featured_media":3465,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[101,100,95,94,93,85,53,43,22],"class_list":["post-3481","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-literacia","tag-rastreios","tag-dia-mundial-das-doencas-raras-2","tag-rare-disease-day","tag-dia-das-doencas-raras","tag-dmj","tag-evento","tag-sca3","tag-aaadmj"],"yoast_head":"\nDia Mundial das Doen\u00e7as Raras - AAADMJ - Associa\u00e7\u00e3o Atl\u00e2ntica de Apoio aos Doentes de Machado-Joseph<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/aaadmj.com\/en\/dia-mundial-das-doencas-raras\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Dia Mundial das Doen\u00e7as Raras - AAADMJ - Associa\u00e7\u00e3o Atl\u00e2ntica de Apoio aos Doentes de Machado-Joseph\" \/>\n<meta property=\"og:description\" content=\"A Associa\u00e7\u00e3o Atl\u00e2ntica de Apoio aos Doentes de Machado-Joseph (AAADMJ), em parceria com a Universidade dos A\u00e7ores, assinalou, no passado dia 28 de fevereiro, o Dia Mundial das Doen\u00e7as Raras 2026 com a realiza\u00e7\u00e3o do evento \u201cRaro em A\u00e7\u00e3o: Cuidar \u00e9 Agir\u201d, no Pavilh\u00e3o Municipal Carlos Silveira, em Ponta Delgada. 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