{"id":3459,"date":"2026-02-09T15:35:27","date_gmt":"2026-02-09T15:35:27","guid":{"rendered":"https:\/\/aaadmj.com\/?p=3459"},"modified":"2026-02-23T12:28:16","modified_gmt":"2026-02-23T12:28:16","slug":"raro-em-acao-cuidar-e-agir","status":"publish","type":"post","link":"https:\/\/aaadmj.com\/en\/raro-em-acao-cuidar-e-agir\/","title":{"rendered":"\u201cRare in Action: Caring is Acting\u201d"},"content":{"rendered":"

No \u00e2mbito da assinala\u00e7\u00e3o do World Rare Disease Day<\/strong>, a Associa\u00e7\u00e3o Atl\u00e2ntica de Apoio aos Doentes de Machado-Joseph (AAADMJ), in partnership with the University of the Azores, will promote the commemorative event \u201cRare in Action: Caring is Acting\u201d<\/strong>, to be held on February 28, 28 de fevereiro<\/strong> 2026, between 11:00 a.m. and 5:00 p.m.,<\/strong>in Sala de Gin\u00e1stica do Pavilh\u00e3o Municipal Carlos Silveira<\/strong>.<\/p>\n\n\n\n

Aimed at the entire population, this initiative's main objective is to inform and raise awareness in the community about Machado-Joseph Disease, reinforcing the importance of knowledge, solidarity, and collective action in the face of rare diseases. The event will provide information about the services provided by AAADMJ, as well as the scientific research carried out in relation to this disease, highlighting the advances and challenges that mark the path of intervention and support for affected individuals and their families.<\/p>\n\n\n\n

At the same time, the following will be promoted free health screenings<\/strong>, emphasizing the importance of prevention, early diagnosis, and the adoption of healthy lifestyles as fundamental pillars for a more informed and aware society.<\/p>\n\n\n\n

With the launch of \u201cRare in Action: Caring is Acting,\u201d AAADMJ reaffirms its commitment to promoting awareness, supporting people with Machado-Joseph disease, and mobilizing the community around rare diseases. Because caring is, in fact, acting, we invite everyone to participate and join this cause, contributing to a more inclusive, supportive, and informed society.<\/p>\n\n\n\n

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\"\"<\/figure>\n<\/figure>","protected":false},"excerpt":{"rendered":"

No \u00e2mbito da assinala\u00e7\u00e3o do Dia Mundial das Doen\u00e7as Raras, a Associa\u00e7\u00e3o Atl\u00e2ntica de Apoio aos Doentes de Machado-Joseph (AAADMJ), em parceria com a Universidade dos A\u00e7ores, promover\u00e1 o evento comemorativo \u201cRaro em A\u00e7\u00e3o: Cuidar \u00e9 Agir\u201d, a realizar-se no pr\u00f3ximo dia 28 de fevereiro de 2026, entre as 11h00 e as 17h00, na Sala […]<\/p>","protected":false},"author":2,"featured_media":3465,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[9,10,1],"tags":[95,94,93,92,91,89,85,43,37],"class_list":["post-3459","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-associacao","category-eventos","category-news","tag-dia-mundial-das-doencas-raras-2","tag-rare-disease-day","tag-dia-das-doencas-raras","tag-ddr","tag-rastreio","tag-89","tag-dmj","tag-sca3","tag-doenca-de-machado-joseph-2"],"yoast_head":"\nRaro em A\u00e7\u00e3o: Cuidar \u00e9 Agir - 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